Archive for May, 2016

Hi guys

I have mentioned before that as well as having depression and dyslexia I also have a disability too. Unfortunately the condition is genetic and there is no treatment for it at the moment. Its called Ehler Danlos Syndrome(EDS), it is a genetic condition where there is an error on the collagen creating gene that means there is less collagen in my muscles meaning i have a wider range of movements but it also means that my joints are unstable.

My hip dislocates three or four times a night, my wrists, fingers, thumbs, toes, rips, shoulders and ankles dislocate with regularity. I have a permanently partially dislocated left hip and walk with a frame for it. It also affects my digestive and reproductive system.

I have asthma and there is a chance that the EDS is affecting my diaphragm which may make my asthma worse. I am lucky that it doesn’t affect my heart but it affects everything else.

I will be talking to my Doctor about getting a support for my hip but being over weight that may have an effect on getting one so i am working hard to lose weight.

To make matters worse I have nerve damage on my left side and a few other things that are a side effect of the med’s I’m on.

I joke that if I stand my back and legs spasms, if I sit down it spasms and goes numb and if I lay down it dislocates.

There are days, as there is with my depression, that are worse than others and I hide away. The more active I am the worse it is. The more active I am the more dislocations I get.

My writing helps me so that I have a distraction from the constant pain and the fact that I am able to pick up and put it down when I have good and bad days thanks to my awesome publisher. I can’t hold down a normal job as my skills are in administration but because I can’t sit in an office chair for more than twenty to thirty minutes and then I have to lay down for an hour, no business wants that.

It also allows me to try and ignore the pain, which is sometimes successful, sometimes. I try my best not to allow either this or my depression beat me, I try to make my life a little better by managing it with my doctors help. I don’t sleep much, which is useful, but what usually happens is that I end up crashing for a full day. People have suggested things to me, some I have tried and they don’t work, some I haven’t tried but its usually down to a reason.

I have an excellent network of friends and family that are always at my side, always willing to help and I am extremely thankful to them for that.

I hope you all have an awesome week and that you are enjoying the nice weather.

Happy writing

Simone

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Hello Guys

twisted coven promo

Yes, she’s live, she’s on sale and I couldn’t be happier. Its available in both Kindle and print and I am so excited.

I am also working on several other books including Hell Hath No Fury, and book three of the Poisoned by Blood series. I’m also working on events and promotion for the four books I have out.

I still have to pinch myself sometimes as I never once thought that i would ever have books on sale so to have three is astounding to me.

Yes I’m super happy with my books and I’m protective and I hope that one day one of my idol’s will read my books, though that is a long shot.

I love watching old documentaries and learning about the past, it helps spark some on the idea’s in my mind. I do find myself waking in the middle of the night with idea’s in my mind, some darker than others.

I love that my publisher too a huge chance on me and I love her for it.

Stay true to you.

Happy writing

Simone