Archive for the ‘ehlers danlos syndrome’ Category

Hi Guys

I have been super busy working on Hell Hath No Fury and Poisoned By Blood Book Three, I have the sequel to Twisted Coven is planned out and ready once I have the other two squared away.

Today I wanted to talk about the pluses of having a support network around writers, whether they be signed, freelance, those wanting to write and those who were still deciding if they truly want to be a writer.

By nature the world or writing isn’t an easy one to be in. It is fought with judgement and angst. You may be told no 20, 100, 300 times before being signed, J. K. Rowling was rejected 12 times before the Harry Potter series was signed, Stephen King’s Carrie was rejected 30 times before being published. It’s part of the job, perseverance and willing to listen to feedback are the best thing’s for a writer to have in their back pocket.

I have received some negative feed back and attention and I’ll show you a few examples and tell you on how to deal with them.

First a review from Shattered Souls

bad review 1

I have redacted the name to protect the person in question. This was a bad review in a sea of four and five star reviews. I was upset when I saw this, I will admit that I did shed a tear but I realized that it was merely a troll, a person who was out to hurt as troll are. You can do nothing about trolls, nothing but ignore them and move on.

Here’s a review for Spilt Blood

Bad review 2

This review is constructive, meaning that instead of five words with no true meaning and are not the slightest bit helpful. They give pointers on how the books going forward can be improved and how they can be better. They advise the use of Beta readers, which is now something I do now. They do question the main characters age state that it would be better if she was older, this is something I debated on this as I wrote the book but her age is important further in the series, in book four. The comment about the ‘rushed’ feel of the book, that was purposeful as their is a serial killer around and they are hunting him before he kills too many people, they don’t really have the time to do much else. Though I think I could have done a bit more character building and relationship building.

Authors are, by nature, solitary nature and we like to work in our own cocoon but we do need a good network of support around us. I am extremely lucky that my Mum and Dad (Stepdad) have always been there, pushing me to be better. I have an awesome husband who believes in me even when I don’t believe in myself. I have an awesome publisher with Vamptasy Publishing, the website is being updated at the moment but it does show several of our awesome writers on their. I also have several fans although I’m only a beginner in this job and they are loyal and that is astounding to me. Having people around to help bring you up when you get that rejection letter or that bad review helps.

While I was lucky to get a yes early on and I love my book home and I would never change that ever in the world and I only hope that one day all authors find their book home.

Thankfully there is no negative review of Dark Side of Humanity yet nor has there been any for Twisted Coven yet, not on Amazon anyway.

I have a lot of things going on this year and I am hoping that my books grow in strength and that those who love it continue too do so. I have a group of people who seem to love my books and people that are happy to share my books on Twitter, Instagram and Facebook.

I am hoping to do a Facebook ad this weekend to help promote the books a little. I am busy, two book releases this year with more going on that are working on in the back ground hence why I’ve been quiet.

My main peaces of advise are as follows:-

  1. Take on the constructive criticism and use it going forward with more books and any re-releases.
  2. Let troll reviews slide off your back and move on.
  3. Make sure you have an awesome network around you.
  4. Don’t let rejection stop you.
  5. Learn, learn and learn. Read, read and read. Write, write and write.

I also know I need an editor as my dyslexia makes things hard work and tricky to do and I quite often miss mistakes, that’sĀ another good thing about beta readers, they help with the process and help make things more coherent.

If there are any subjects you want me to take on please let me know and I’ll see what I can do.

Happy Writing

Simone

Hi guys

I have mentioned before that as well as having depression and dyslexia I also have a disability too. Unfortunately the condition is genetic and there is no treatment for it at the moment. Its called Ehler Danlos Syndrome(EDS), it is a genetic condition where there is an error on the collagen creating gene that means there is less collagen in my muscles meaning i have a wider range of movements but it also means that my joints are unstable.

My hip dislocates three or four times a night, my wrists, fingers, thumbs, toes, rips, shoulders and ankles dislocate with regularity. I have a permanently partially dislocated left hip and walk with a frame for it. It also affects my digestive and reproductive system.

I have asthma and there is a chance that the EDS is affecting my diaphragm which may make my asthma worse. I am lucky that it doesn’t affect my heart but it affects everything else.

I will be talking to my Doctor about getting a support for my hip but being over weight that may have an effect on getting one so i am working hard to lose weight.

To make matters worse I have nerve damage on my left side and a few other things that are a side effect of the med’s I’m on.

I joke that if I stand my back and legs spasms, if I sit down it spasms and goes numb and if I lay down it dislocates.

There are days, as there is with my depression, that are worse than others and I hide away. The more active I am the worse it is. The more active I am the more dislocations I get.

My writing helps me so that I have a distraction from the constant pain and the fact that I am able to pick up and put it down when I have good and bad days thanks to my awesome publisher. I can’t hold down a normal job as my skills are in administration but because I can’t sit in an office chair for more than twenty to thirty minutes and then I have to lay down for an hour, no business wants that.

It also allows me to try and ignore the pain, which is sometimes successful, sometimes. I try my best not to allow either this or my depression beat me, I try to make my life a little better by managing it with my doctors help. I don’t sleep much, which is useful, but what usually happens is that I end up crashing for a full day. People have suggested things to me, some I have tried and they don’t work, some I haven’t tried but its usually down to a reason.

I have an excellent network of friends and family that are always at my side, always willing to help and I am extremely thankful to them for that.

I hope you all have an awesome week and that you are enjoying the nice weather.

Happy writing

Simone