Posts Tagged ‘Eds’

Hi

So I’ve been busy with writing and building my YouTube Channel. I have been saving for my trip to London, which I hope to have a date soon, keeping fingers crossed. I have a list of book’s I want to write, video’s I want to do, stream theme’s I want to do, I hope to do one for EDS Society UK at some point this year.

I was out drinking last night at a pub watching my friends band play. He’s the drummer and he’s awesome. I’m biased as he’s my besties hubby but I still believe he’s awesome.

I hope to get some video’s up but I’ll check with them first so watch this space. I am lucky that a lot of people i have around me are creative. My husband and I are working on his books still but I’m trying to finish the two series I have going on before I start on any others.

Once I have dates and video’s I’ll share them with you. Here’s my YouTube Channel, please check it out.

Stay creative and stay you.

Simone

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Hi Guys,

I’ve just watched a Just Kidding News video about bulling Click Here and it made me think of my childhood, what little I can remember.

No, I will not name names nor will I give you hints all I will tell you is their sex.

At primary school there was 12 people per year so bullying wasn’t a thing at that school, secondary school was a different matter.

Just to explain the UK school system.

4-11: Primary School

11-16: Secondary/high-school

16-18 College/sixth form

18 Plus is either University is adult learning

I was bullied, picked on, for being on the heavy set, there was names that I ignored to the best of my abilities, I was hit and beat on several occasions because I was teachers pet and got on well with people that are older than me, which I still do now (my best friend is 14 years older than me and my husband is 8 years older) but I was never bullied to the level that has happened in some famous cases such as Amanda Todd, Taylor Alesana and Leelah Alcorn where bullying wasn’t limited to the playground, like it was when I was at School which was 1993-1998, but now involves the various form of social media including but not limited to Twitter, Facebook, YouTube, Vine, and Tumblr.

Now a bully will make a Facebook page or Twitter account and use it to torment the victims with their lies and various other things including manipulated pictures and they relentlessly bash their victim for what ever reason. This is permanent and the bully will have a link to it for eternity and it may affect their ability to do something in the future but the constant barrage of nasty comments affects people and they sometimes take their own lives like the three mentioned above.

I do have lasting affects from my bullying? The basic answer is yes! I am reluctant to shown my face my face on my streaming or Youtube channel and I am planning on doing some professional pictures for my brand items but I don’t want to with my body in the shape it’s in. I am over weight due my under-active thyroid and my EDS, the former slows my metabolism considerably and the latter makes excising almost impossible, the more active I am the more I have my joints dislocate.

Remember that what ever you do on the internet is there permanently and monitor your children’s access to social media and make sure that they don’t use it to maliciously attack or bully others.

Have an awesome Thursday, it’s Thursday am 3.42.

Will fill you in on book stuff soon, I have some awesome things to share with you.

Stay Strong, be happy, live well, be creative.

Simone

Hi guys

I have mentioned before that as well as having depression and dyslexia I also have a disability too. Unfortunately the condition is genetic and there is no treatment for it at the moment. Its called Ehler Danlos Syndrome(EDS), it is a genetic condition where there is an error on the collagen creating gene that means there is less collagen in my muscles meaning i have a wider range of movements but it also means that my joints are unstable.

My hip dislocates three or four times a night, my wrists, fingers, thumbs, toes, rips, shoulders and ankles dislocate with regularity. I have a permanently partially dislocated left hip and walk with a frame for it. It also affects my digestive and reproductive system.

I have asthma and there is a chance that the EDS is affecting my diaphragm which may make my asthma worse. I am lucky that it doesn’t affect my heart but it affects everything else.

I will be talking to my Doctor about getting a support for my hip but being over weight that may have an effect on getting one so i am working hard to lose weight.

To make matters worse I have nerve damage on my left side and a few other things that are a side effect of the med’s I’m on.

I joke that if I stand my back and legs spasms, if I sit down it spasms and goes numb and if I lay down it dislocates.

There are days, as there is with my depression, that are worse than others and I hide away. The more active I am the worse it is. The more active I am the more dislocations I get.

My writing helps me so that I have a distraction from the constant pain and the fact that I am able to pick up and put it down when I have good and bad days thanks to my awesome publisher. I can’t hold down a normal job as my skills are in administration but because I can’t sit in an office chair for more than twenty to thirty minutes and then I have to lay down for an hour, no business wants that.

It also allows me to try and ignore the pain, which is sometimes successful, sometimes. I try my best not to allow either this or my depression beat me, I try to make my life a little better by managing it with my doctors help. I don’t sleep much, which is useful, but what usually happens is that I end up crashing for a full day. People have suggested things to me, some I have tried and they don’t work, some I haven’t tried but its usually down to a reason.

I have an excellent network of friends and family that are always at my side, always willing to help and I am extremely thankful to them for that.

I hope you all have an awesome week and that you are enjoying the nice weather.

Happy writing

Simone

Of any of you have read any of my earlier blogs you’ll be aware that I suffer from depression as well as various other things but this I concentrated on depression.

There are days where my depression can wrap it’s self around every part of me and pull me into a dark it and while there are days it paralyses me, there are days it won’t let me sleep and there are times where it feeds my writing.

Most of my writing is very dark and sometimes my depression acts as a secondary muse and fuels various tales. It’s strange, I get that, but it works.

I was diagnosed with depression in February of 2009 when my Ehlers Danlos kicked into overdrive but I knew the ‘sadness’ was there for as long as I remember. I was, like many others, in denial about it and I refused to ask for help.

Now I’m medicated and it helps but there are days, usually days where my pain levels are sky high where I am reluctant to get out of bed unless I have to. It’s not healthy, I get that, but the dark hole is just too big and those are the days were food doesn’t matter in the slightest; I am consumed by the black hole inside of me.

I am writing this to tell those who have depression that they are not alone and that the days where the sadness isn’t paralyzing that it’s possible to achieve things. Look at what I’ve managed to do, I have two books out on sale, a short in an anthology that is selling well even though it was only released on the 18th. I have two releases coming up early next year and I have four other books that my publisher wants plus a few others that I’m working on.

Yes, I have depression

Yes, I have meds for it

Yes I know I have it

Yes I live with it

I won’t let it define me

I won’t let it control me

I won’t let it win

I won’t let it beat me

 

There may be days where it fogs me up

There may be day where it conspires against me

There may be day it won’t let me sleep

There may be days it makes me want to hide

I love

I laugh

I fight

I win

And a side night, you can have depression and laugh

 

I am blessed that I am surrounded by people who care about me and make me feel safe.

If you think you have depression please speak to you doctor. Don’t wait until it’s dangerously bad before you ask for help or do something you can’t undo.

 

Let’s fight against mental illness in all its forms and stop the stigma attached to it.

That’s enough rambling from me.

Happy Wednesday.

Simone

 

Life

I have been busy. I’ve emailed Spilt Bloods sequel to the boss lady and now i wait on tender hooks while she reads and gets back to me. I’ve renamed it to ‘The Dark Side of Humanity’, and I really like this one, its got darkness, passion, hate, venom and death. It gets smoking hot in there too.

There is more information on the relationship between the Master and Joslyn. CLICK HERE TO GET BOOK ONE!!

I am also super excited as in two weeks I am meeting probably my first ever celebrity crush at Sheffield Comicon. I will be meeting Michael Biehn, the star of Terminator, Aliens, Navy Seals, and so much more as well as the basis for Detective Brooks in ‘The Dark Side of Humanity’, and I am so excited. There’s also the Game of Thrones throne, which is exciting for the three that are with me, they are huge fans, me, not so much.

But its going to be fun, my disability badge has arrived so that I won’t have to walk to far. EDS and insomnia sucks and make life interesting. my mind is constantly moving and thinking hard about things. It is more than a little interesting when I read things back that I’ve written in a sleep deprived state.

So a busy time for me at the moment, including writing. I’m currently writing Hell Hath No fury too, the main character is based on my Best friends daughter, (who’s only a few years younger than me), and i can wait for you to see either of these, I’m also doing work on Night of the Demons 2, an anthology I’m in and I’m super excited.

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Have an awesome Tuesday,

Simone

Morning Readers,

I really hope you liked all the prose I’ve been sharing lately. I have found my love of poetry and much like my writing mind it takes over. My mind never shuts down, its always on the go, its a good thing and a bad thing, especially when I’m trying to sleep.

I will be posting some prose later today, I’m working on an anthology submissions and Spilt Blood’s sequel. I love writing, it give me so much joy.

Don’t forget to check out my books #onehouseunited

http://smarturl.it/SpiltBlood

http://smarturl.it/SpiltBlood

Happy Writing

SImone

Hello guys,

I’ve been hard at it and the sequal to Spilt Blood has been typed up and I have started with the edits. Time to get cracking on them. I have also been working several anthology submissions, some on the saucy side, some on the scary side.

I LOVE WRITING.

best get back at it, I want to get the sequal to my boss asap so best get to it.

Happy writing

Simone

Hello guys

I enjoyed taking over a friends face book fan page yesterday and I shared a lot on their, I will share some here soon.

I have been a bit on the busy side, yet again, with writing Dirty Little Secrets, Poisoned By Blood book two, rewriting the basis for book three.  I’ve also been working on a few anthology submissions on day when my body allows.

Being a writer has one main advantage, other than entertaining others, of being a writer is that I can pick it up and put it down when I’m having a good pain day or when I’m having a bad pain day. It helps that my publishing company gives me a lot of understanding. They don’t judge me in anyway. Thankfully I have an excellent and wonderful husband, a brilliant family and a good network of friends that help me along.

Happy Writing

Simone

Hi guys,

Its been a busy month, I’ve been working on anthology submissions and promotion for Spilt Blood while working on the sequel, when my body allows it to happen. We’re battling on, I just wish this damn recession would end and things go back to some form of normal.

Writing is a job and a manner of staying sane, I can put it down and pick it up when I have good days and bad days, I just wish the good outnumbered the bad. I am lucky with having supportive friends and family as well as my publisher, she’s super understanding and doesn’t push me too hard.

So much going on including an even coming up soon where I take over a friends facebook fan page, and I really can’t wait.

I need to get as much visibility as possible.

Happy writing guys

Simone

Hello Internet

I have been so busy of late, we have organised the study and thrown away so much of our accumulated crap and organise what we were keeping, I’ve also been working on anthology submissions, causing my brain to work over time.

Also I have rekindled my love of writing poetry and it has pulled me into a few different directions and one of my anthology submissions is poetry. I’ll be sending it this next week, keep your fingers crossed.

I’m also doing some stuff of an adult nature for anthologies. The plan is that if I get into a few anthologies that it will increase my visibility with regards to my other books. I’m working on anthology submissions until may then back to Spilt Bloods sequel and a project tentatively titled A Woman Scorned where my best friends daughter modelled for the book cover.

I am also thinking of reviving a few other projests though I don’t want to give myself to much. I love writing and my brain is constantly generating ideas, too many for me to keep up with.

Happy Writing and keep smiling

Simone